For family and friends of Trenna Berry who would like updates on her journey with Meningioma Brain Tumors. Keep her in your prayers!
Wednesday, November 16, 2011
Not over yet
Saturday, November 12, 2011
Keeping a Close Watch
Friday, November 11, 2011
Today
Surgery Setbacks
At about 9 a.m., I got a text message from my dad saying that she was being rushed to the ER, and that she might have had a stroke or seizure. He wasn't sure. In order to give her a CT Scan, they had to sedate her (I think because she was still having seizures?).
After the CT, the doctors said it wasn't from a brain bleed or stroke, but they still didn't know what was going on. They've been waiting for her to wake up and become a little more coherent, but she is having issues with short-term memory loss. She'll wake up, say her tongue hurts, ask what happened, and then fall back asleep. Moments later, she'll do the same thing.
The doctors have been on the phone with Dr. Black's office all day, and they've decided to transfer her to St. Jude's Hospital by 3 p.m. This is good because it means they don't think it's serious enough to transfer her back to Cedars Sinai for more intensive monitoring!
Please pray for her and for our family. This is a pretty scary day.
-Shannon
Tuesday, November 8, 2011
Thank you for the prayers!
Second Brain Tumor Surgery
We will keep you posted on all the updates here and on her Facebook page.
-Shannon
Saturday, August 6, 2011
So Much To Be Grateful For
A couple of weeks ago I did have the scary headache, which resulted in a trip to Cedars for a stat MRI. We saw Dr. Black and he said that my brain looked good, and that the blood clot had gotten a little bit smaller. We talked about the next surgery and he wants to schedule it in November instead of September, in order to give the clot some more time to dissipate. So the next MRI will be the brain mapping one, the night before the surgery! Ugh.....so not looking forward to that...however, everyone anticipates the next surgery to be more straightforward (less precarious in many wasy) and a shorter hospital stay than the first one. I hope so.
I am truly in awe of how things worked out throughout this whole ordeal. Thankfully the insurance thing worked out perfectly thanks to Dr. Black and his office staff, Dr. Tim Schmidt, the two wonderful RN case managers for Cigna and St Jude Heritage Medical Group, and the wonderful people at Mission Hospital, including my wonderful nurse manager, Kathy Whitehouse. Also thank you to my son-in-law, Matt Smith and also to Kevin Allen for helping me with a letter to the medical group (HMO). I am not sure exactly how it all resolved, but it did.......and as the medical bills keep pouring in, I am grateful we did not have to sell our home to make a dent in them!!!
I am also incredibly grateful to all of you dear loved ones who were in the waiting room during the surgery, praying and keeping my poor family company (it was very comforting to them); Father Wayne and Lynn, Kevin and Colleen, Joey and Kathy (flew in from Utah to be with us....for several days!!), Jeff and Deedee, Shea, my children of course, Luann, Cindy R., Margaret, Scott Nassau, and the many many friends, coworkers, and godfamily praying in other locations (one dear friend, who is ill himself, took the day off work to pray for me). I have NO DOUBT that this good outcome was as a result of your prayers in so many ways. Thank you also to all of you who came to see me in the hospital and here at home, for the DELICIOUS meals that have been so thoughtfully and lovingly prepared, for the beautiful flowers, and many many cards and sweet, encouraging notes (Mission nurses!!!). All of these things have served to bless and encourage us, and Mitch and I have been strengthened by your love and concern. Words cannot express our gratitude.
The reality of what I have experienced and am experiencing is only now beginning to hit me. So happy and grateful to be alive, to hug and kiss my husband and children, so cuddle with and read to my grand daughters, to see, talk with, and hug the friends and god-family I love so much, to read, to be able to think about going back to work and making a difference, to appreciate my garden, my sweet dogs, the ocean, and walking through my lovely neighborhood (chickens and all).
"For me there are few things more beautiful in the universe than the human brain. Unlike any other organ in the body, our brain is the essence of what makes us human, our memories, our thoughts, our our personalities- one hundred billion nerve cells, working in absolute harmony to allow us to see, to smell, to move, to understand, and to create. We have only begun to understand the marvel of this three pound mass of grey and white matter. I have focused my entire professional career on learning about the brain. As a young medical student I aspired to solve the riddle of human consciousness, to demystify the interface between the mind and the brain. Now as a brain surgeon, my life's work is to operate within this sacred territory, within this most complicated and delicate structure in the universe." Dr. Keith Black (my truly wonderful and gifted surgeon)
The next entry will be about him.
Wednesday, July 20, 2011
Your prayers and needed!
Friday, July 1, 2011
Getting back to Normalcy
Thursday, June 30, 2011
Visit With Dr. Black
Please forgive, in advance, the ineptitude of this post, as I am truly exhausted today. The day started off great with my daughter Ashley, baby Cecily, and god-daughter Valeska coming over and helping me washa few sections of my gross hair! This was a total blessing, as it was still all full of yuckiness. Then thry helped me get dressed and ready to go down to Cedars to see Dr. Black at 1:45. So grateful for the loving, helping, hands of servants who have been helping us so very much!!
We were about 20 minutes late to the appt, and it was okay, they're so great at his office and people come from all over the world to see him, so I am certain they are very understanding. Dr. Black and his team gave us the best news and that is that the pathology came back and the tumor is WHO Grade I, which means it is officially NOT cancer!!! Glory to God for all things!!!! He did say that the bone was really involved, so as I suspected, I will be having lifelong MRIs to check for regrowth.
Regarding the blood clot issue, Black and his neuro-oncologist seem to feel that it will resolve on its own in a couple of months. I will have another MRI in TWO months and we will then schedule the second brain surgery for the occipital tumor, ugh. Rather a daunting thought right now, to be honest! However, from what I hear, this last one was the worst one. They had to totally lift out the cerebellum to get to it, as well as that locale is the nausea/vomiting center, as well as the balance center; so that explains the horrible first two days of nausea and pain.
On the way home, I needed some food for the meds, so we stopped for tea, and it was nice, but visually overwhelming. I realize that I really do need to REST my brain in order to heal!
When we got home, we had an amazing dinner waiting for us, brought by my sweet nursing school friend, Katie Godin!!!!!!!!!!! Homemade with such care....we were TRULY blessed!!!!!! Mitch was going crazy, in fact. The Asti for later, the sweet card, just everything!!!!!! SUCH a blessing!!!!!!
Also, our sweet friends and neighbors, Karen Kinan and her beautiful adughter, Vanessa came over with one of her glorious fruit feasts, and a lovely quiche packed with zucchini (LOVE!!!), Katie's dinner had lots of fruit and veggies too.....just total YUM!!!!!!!! We were in fruit glory!!!! Also sweet Rob and Robin came by with JoJo and dark chocolate!!! So great to hug them. Just really overwhelmed by people's prayers, care, and thoughtfulness. Thank you all SO MUCH!
So we have no idea what the "new normal" will be, but we trust it will be good for us, because God is good TO us and knows what we need.
Until Later....Night Night:)! xoxoxo
Monday, June 27, 2011
Special Shout Out!
They have been with Trenna every single step of the way, and are such amazing supporters. Anyone in the world would be blessed to have such wonderful friends, and we're so glad that Trenna does!
Here's a shot of her and Kathy.
LAST DAY AT THE HOSPITAL!!!
Yesterday, I managed to drive up to the hospital and stick around for a few hours. It's amazing how she's so alert and interactive! We had conversations and she even walked around for a little bit! Just think, at the beginning of the weekend, she was in such discomfort, and now she's feeling so much better!!
A prayer need came up yesterday while I was there. She was sitting calmly, and a nurse came in to take her blood pressure and temperature. Her blood pressure turned out to be quite high, and it really made her worry. The problem with high b.p. is that it could move her clot, and anything like that is dangerous for her right now. Plus, anything that makes her worry is not good because it makes her anxious, and she needs to be resting.
UPDATE: As it turns out, her blood pressure is from the steroids.
So, the happy news!! Trenna is now going to be comfortable in her own home! Please continue to pray for a quick recovery!
Thanks, everyone!
Saturday, June 25, 2011
End of Day 3
She's getting intermittent rest and upbeat right now....
She is getting regular doses of pain meds and they seem to be helping. Doctor after doctor has been coming into the room/suite discussing the blod clot and team work approach to it. Your prayers for that would be coveted. Enough to think about without that too!
Got on tap a steady flow of visitors this afternoon, which is the first time she has been up to the task. No further MRI's scheduled but we may see another on Monday
Friday, June 24, 2011
A PICTURE!!!
Out of ICU
Just a note, she still cannot/should not receive visitors except for family. We've been relaying messages to her to let her know how wonderful all of her friends are, though!
Her swallowing is still not fully functional. It doesn't necessarily hurt her, but she says that it feels like the left side of her throat is going to collapse. This is making her really nervous and keeping her from relaxing. It's also keeping her from wanting to eat or drink.
So, the nausea is still really strong, as is her pain, and she's still having problems swallowing. Please pray for all of these things, and pray for her stress level to go down.
On a happy note, she looks as beautiful as ever, and her color has come back! She was able to sleep a little bit this afternoon while we prayed the Moleban again for her and the Akathist to St. Panteleimon.
Thanks, guys!
-Shannon
Seen three more doctors...
Morning MRI
Thursday, June 23, 2011
Blood Clot
They're doing frequent checks on her blood clot, which is in one of the veins in her brain. Dr. Black said that it was small enough not to be too worried about, but that they put her in ICU to make sure it doesn't become any larger and worrisome.
So, please keep praying for her nausea and her pain! We'll keep you posted tomorrow!
-Shannon
In ICU
She also has a little blood clot, so they're keeping her there in order to keep her hydrated.
She's in A LOT of pain, very pale, nauseous, is having problems swallowing (which could be from the throat tube), and is having panic attacks. Please pray for her to be calm and for some relief from pain.
3:00pm UPDATE!!!
Thank the Lord!!!!!!
Shout for joy to the LORD, all the earth.
2 Worship the LORD with gladness;
come before him with joyful songs.
3 Know that the LORD is God.
It is he who made us, and we are his[a];
we are his people, the sheep of his pasture.
4 Enter his gates with thanksgiving
and his courts with praise;
give thanks to him and praise his name.
5 For the LORD is good and his love endures forever;
his faithfulness continues through all generations.
Thank you all for your prayers.
-mary, for all the family
Its Finally Begun
Though an anxious wait looms in front of my family, we're grateful for company. The friends I see in the waiting room right now are Fr. Wayne and Lynn Wilson, Kevin and Colleen Allen, Margaret Kristoff, Shea Randall, Scott Nassau, Cindy Rethmeier, with Deedee and the Funicello's downstairs. My mom has some incredible friends.
-Ashley
After dad and the kids had all gone in, Ashley came out laughing, saying Trenna refused to let them take her into surgery until she had seen Matt, Mary, and her "sisters" Deedee and Kathy. Haha :) We took her the icons of Christ and the blessed Sweet Kissing icon from Michele Marr to venerate, which I'm sure will help her along the way.
Here's what it kind of looks like:
She wouldn't let me take any pictures of her, but she looked lovely and calm (and medicated). She has an Orthodox nurse that she introduced everyone to, too!!
So, here we are! The waiting has begun! We appreciate your continued prayers!
Now a really "great" photo of my dad in the hospital eating jello...with chopsticks.
We'll continue giving you updates as we get them!
Tuesday, June 21, 2011
About the Moleban Service
Father Wayne asked that all of her family come and surround her, and anyone who wished to stay for the service could do so as well. I could only feel the presence of a mass of people behind me (the amount of which, I am sure I have never seen for a Moleban), but I know that when Father Wayne asked Trenna to turn around and see how many people were there praying with her, it was then that the inevitable tears began. When all of us sang together, I know that nothing came out of my mouth because the voices behind us were many and powerful--it took my breath away.
Standing there, surrounded by icons of the many saints and martyrs who endured their own ailments with such grace, stood my step-mother with all of her family and church family together asking God to help her to do the same. The thing I love about this service is that it is so encouraging. Every prayer is a constant reminder that she is not alone—that with Christ on one arm, and the Theotokos on the other, she will walk into the surgery and walk out again, covered in the grace and mercy of God.
If you feel inclined to look at or pray these prayers for Trenna, here is a link I found: http://www.orthodox.net/services/moleben.html
Trenna was annointed on Sunday with oil from a lampada from the reliquary of St. John Maximovitch. This is especially significant because, for American Orthodox people, he is one of the influential missionaries that brought our wonderful Faith to us. He is also known for visiting and healing people in times of sickness, including our own parish priest.
Following the service, Trenna tearfully received hugs from pretty much everyone there, as I’m sure that there was not one dry eye present. It was all very supportive and wonderful, and very touching for my step-mom and my dad.
We will continue to keep you updated on the events of this week!
The plan thus far: On Thursday, Trenna will be admitted in the wee morning hours, and her surgery will begin at 7:00 a.m. It should last until around 1:00 p.m., at which point, the surgeon will come out and talk about how it went. There is no knowing how Trenna will be after her surgery—if she will be alert and comfortable enough to receive guests or phone calls. Please feel free to post on this blog, and we will make sure she gets your message. She will have a recovery time of about 4-5 days before she can come home.
We would greatly appreciate it if you could sign up to bring meals for her and my dad. While it is hard for them to accept any help, it is necessary, and also very appreciated J. There is a link in the blog tabs above.
Thank you, everyone, for your love and support! It means more to us than we can say!
Sunday, June 19, 2011
A Very Good Day.
So as most of you know, after many consultations, emails, phone calls, prayers of beloved friends and family, and the maze of insurance issues, my brain surgery is scheduled for Thursday, June 23rd with Dr. Keith Black at Cedars Sinai Medical Center. We will check into the South Tower at 5:00 AM and be taken to the 8th floor of the North Tower for pre-op prep and etc. The surgery will begin at 7:15.
This is my wonderful surgeon:
http://www.time.com/time/reports/heroes/tumor.html
http://en.wikipedia.org/wiki/Keith_Black
I am truly blessed beyond belief that I'm able to have such a marvelous, gifted surgeon. God has been so kind. But, He always is. Anyway, please pray for Mitch and my family as they wait for news; it hurts me to think of them worrying.
Today our beloved priests, children, and St. Barnabas family gave me a beautiful gift. They prayed a healing prayers service (Moleban) that was truly one of the most wonderful, humbling, blessed experiences of my entire life. Words are truly not sufficient to express my gratitude and love for each one of you. As I often do, I missed my dad terribly today, but I felt his presence during the prayers and throughout the day. Today was a very good day; and I will carry those prayers, your love, your faith, and that memory with me into the OR on Thursday morning.
Thank you everyone for all of your prayers, good thoughts, well wishes, cards, notes, encouraging emails, and many acts of kindness and generosity to me and my family!! I look so forward to seeing you all very soon:).
With Love and Gratitude,
Trenna